elpa.eu Reviews

The European Liver Patients’ Association (ELPA) is a non-profit organization that aims to promote the interests of people with liver disease. It focuses on several key areas:

Raising Awareness: ELPA works to highlight the size of the problem of liver disease, promote awareness, and prevention. It also addresses the low profile of liver disease compared to other areas of medicine, such as heart disease.

Sharing Experience: The organization aims to share experiences of successful initiatives in managing liver disease.

Working with Professional Bodies: ELPA collaborates with professional bodies such as the European Association for the Study of the Liver (EASL) and the European Union to ensure that treatment and care for liver disease are harmonized across Europe to the highest standards.

Advocacy: ELPA advocates for policies that prioritize liver health and the prevention of liver diseases at both the national and European levels. It also collaborates with relevant stakeholders, including patient advocacy groups, healthcare providers, and policymakers, to influence policy decisions related to liver disease awareness campaigns, funding allocation, and healthcare system improvements.

Promoting Research and Innovation: The organization focuses on promoting evidence-based practices, encouraging research participation, and establishing partnerships with pharmaceutical and biotechnology companies to promote industry engagement in liver disease research, development, and patient support initiatives.

Regulatory Engagement: ELPA is actively engaged in advocating for stringent regulatory standards and post-marketing surveillance to ensure patient safety and the availability of high-quality treatments for liver diseases. It collaborates with regulatory bodies to streamline approval processes and reduce barriers to accessing innovative treatments.

Corporate Partnerships: The association collaborates with corporate entities, including pharmaceutical and biotech companies, to expand its reach and impact, leveraging resources and expertise to implement impactful initiatives. ELPA’s corporate partnerships have helped raise awareness, enhance patient support programs, and advocate for improved access to treatments and healthcare services.

Patient-Centric Approach: ELPA’s efforts are centered on a patient-centric approach, ensuring that the voices of liver patients are heard, and their concerns are addressed in all aspects of its work.

The organization’s activities include participating in clinical trials and research initiatives, advocating for improved access to healthcare services, and promoting policies that ensure equitable access to liver disease care, medications, and transplantation services.

ELPA’s work is guided by its president, Marko Korenjak, and it has emerged from a desire among European liver patient groups to share their experiences and collaborate with regulatory bodies, professional organizations, and industry stakeholders to improve the lives of liver patients and advance liver health across Europe.”

the reasons behind this review :
Non-profit organization, Aims to promote the interests of people with liver disease, Focuses on raising awareness, Sharing experience of successful initiatives, Collaborates with professional bodies like EASL and the EU, Advocates for policies prioritizing liver health, Promotes research and innovation in liver disease, Actively engaged in advocating for stringent regulatory standards, Collaborates with corporate entities including pharmaceutical and biotech companies, Patient-centric approach, Participates in clinical trials and research initiatives, Advocates for improved access to healthcare services, Promotes policies for equitable access to liver disease care, medications, and transplantation services, Guided by its president, Marko Korenjak, Emerged from a desire among European liver patient groups to share experiences and collaborate with regulatory bodies, professional organizations, and industry stakeholders, Works to improve the lives of liver patients and advance liver health across Europe